Brilee Needs a Heart transplant
I am writing to you all in hopes you will send Brilee a Get Well soon card.
Brilee is my Great Niece; she was born November 29th 2010, at Children's Hospital in St. Louis, Missouri
She has;
Critical AS; bicuspid aortic valve, dilated LV with poor Function, moderate EFE of the LV, arch hypoplasia.
Intraoperative SVT, which progressed to ventricular tachycardia and ventricular fibrillation, on Digoxin.
Pre surgery large thrombi x2 noted within Left ventricle. Treated with lovenox therapy.
Tricuspid Valve regurgitation (post-operative).
at 10-days-old
On December 9th Brilee had surgery; s/p Norwood reconstruction including an atrial septectomy, division of the patent ductus arteriosus, and placement of a right modified Blalock-Taussig shunt using a 4.0mm Gore-Tex graft.
On January 18th Brilee was life lifted to Children’s Hospital in St. Louis Missouri
She has passed the entire test to be placed on the Transplant List Monday 23rd January. She is an a1 on the list.
Today they took her off the Respirators at 1pm for the 4th time this time Brilee crashed she is now stable and they have her on life support tomorrow Wednesday 26th I hear they will run test to see if she has suffered Brain Damage, If she did they will remove her the Transplant List…
PLEASE send Brilee get well cards… she will be 8-weeks-old January 29th 2011
St. Louis Children's Hospital
Brilee Marriott Rm 7
One Children's Place St. Louis, MO 63110
I know this will greatly lift my niece Jennifer and her Fiancé Sean spirits up..
Thank you.
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Edited
DrJBHL made a post here
Thank you Dr.JBHL