DELETE THIS POST it is Obsolete Brilee Needs a Heart transplant

My Niece

Published on January 26, 2011 By Disturbedcomputer In WinCustomize Talk

Brilee Needs a Heart transplant

I am writing to you all in hopes you will send Brilee a Get Well soon card.

Brilee is my Great Niece; she was born November 29^th 2010, at Children's Hospital in St. Louis, Missouri

She has;

HLHS which is Hypoplastic left heart syndrome

Critical AS; bicuspid aortic valve, dilated LV with poor Function, moderate EFE of the LV, arch hypoplasia.

Intraoperative SVT, which progressed to ventricular tachycardia and ventricular fibrillation, on Digoxin.

Pre surgery large thrombi x2 noted within Left ventricle. Treated with lovenox therapy.

Tricuspid Valve regurgitation (post-operative).

at 10-days-old

On December 9^th Brilee had surgery; s/p Norwood reconstruction including an atrial septectomy, division of the patent ductus arteriosus, and placement of a right modified Blalock-Taussig shunt using a 4.0mm Gore-Tex graft.

On January 18^th Brilee was life lifted to Children’s Hospital in St. Louis Missouri

She has passed the entire test to be placed on the Transplant List Monday 23^rd January. She is an a1 on the list.

Today they took her off the Respirators at 1pm for the 4^th time this time Brilee crashed she is now stable and they have her on life support tomorrow Wednesday 26^th I hear they will run test to see if she has suffered Brain Damage, If she did they will remove her the Transplant List…

PLEASE send Brilee get well cards… she will be 8-weeks-old January 29^th 2011

St. Louis Children's Hospital

Brilee Marriott Rm 7

One Children's Place St. Louis, MO 63110

I know this will greatly lift my niece Jennifer and her Fiancé Sean spirits up..

Thank you.

Pictures

http://www.facebook.com/album.php?id=100001591729901&aid=20978

or

http://www.myspace.com/disturbedcomputer/photos/albums/brilee/1604516#mssrc=SitesPhotos_SP_AlbumCover_ViewAlbum

Videos

http://www.facebook.com/video/video.php?v=135961053133618

http://www.facebook.com/video/video.php?v=133055596757497

http://www.facebook.com/video/video.php?v=132953656767691

Edited

DrJBHL made a post here

A Get Well Thread For Brilee

Thank you Dr.JBHL

Comments (Page 6)

LightStar

on Mar 14, 2011

Great news for sure!

Disturbedcomputer

on Mar 14, 2011

Thank you

LightStar

Disturbedcomputer

on Mar 19, 2011

Disturbedcomputer

on Mar 19, 2011

The Dream Catcher <<---St. Louis channel 5 News

11 families has had the Dream Catcher

The dream catcher has become legendary at the Heart Center at St. Louis Children's Hospital. What began as an art project for one little girl awaiting a heart transplant has now become a good luck charm handed from patient-to-patient waiting for new hearts. Many believe it brings a new heart faster.

The average wait for a heart transplant can be 4-6 weeks. It can also take several months. When a young girl who'd waited months for her heart finally got transplanted just days after hanging this Native American dream catcher, a legend was born. She passed it along to the next patient, who passed it to the next patient, and so on. Each child adds his or her own tiny hand-made heart to the bottom of the dream catcher. Today, eleven hearts hang from the bottom of the catcher, representing the eleven children and their families brought closer together through heart transplantation. Many believe the dream catcher brings good luck, or perhaps makes the new heart come faster. But all agree it creates an immeasurable bond between these families and proves that - medically and emotionally - St. Louis Children's Hospital is where the heart is.

Sorry Tried 4 times to get the video in here but no go and I did use the old code and HTML

DrJBHL

on Mar 19, 2011

DC.... the vid's there... you succeeded. Try viewing with a different browser.

Disturbedcomputer

on Mar 19, 2011

I still can't see it was in FF now in IE in post 79 I do see an outline with a red X in the upper left cornner in IE

LightStar

on Mar 19, 2011

I am in latest FF DC and see the video just fine when I click on the link. That is a beautiful thing, I have 4 dream catchers in my home.

Disturbedcomputer

on Mar 19, 2011

I am in latest FF DC and see the video just fine when I click on the link. That is a beautiful thing, I have 4 dream catchers in my home.

my niece Brilee is it and her Mom

something is going very WRONG on my side still don't see the Video and tried 2 system restores and they both field must have a bug

Uvah

on Mar 19, 2011

Are you talking about post 78? Because if you are I don't see the vid either and I'm using palemoon.

Frankief

on Mar 19, 2011

DisturbedComputer

reply 81

I still can't see it was in FF now in IE in post 79 I do see an outline with a red X in the upper left cornner in IE

Ditto but the link works

Disturbedcomputer

on Mar 19, 2011

Are you talking about post 78? Because if you are I don't see the vid either and I'm using palemoon.

yes 78 and 79 ..

well at lest I know it's not just me so it can't be a bug on my pc

Uvah

on Mar 20, 2011

The link in 79 works fine. Just not the vid in 78.

Disturbedcomputer

on Mar 20, 2011

The link in 79 works fine. Just not the vid in 78.

there should be a video in both but the same video so then i just put a link in 79

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She has;

HLHS which is Hypoplastic left heart syndrome

Critical AS; bicuspid aortic valve, dilated LV with poor Function, moderate EFE of the LV, arch hypoplasia.

Intraoperative SVT, which progressed to ventricular tachycardia and ventricular fibrillation, on Digoxin.

Pre surgery large thrombi x2 noted within Left ventricle. Treated with lovenox therapy.

Tricuspid Valve regurgitation (post-operative).

at 10-days-old

On December 9th Brilee had surgery; s/p Norwood reconstruction including an atrial septectomy, division of the patent ductus arteriosus, and placement of a right modified Blalock-Taussig shunt using a 4.0mm Gore-Tex graft.

On January 18th Brilee was life lifted to Children’s Hospital in St. Louis Missouri

She has passed the entire test to be placed on the Transplant List Monday 23rd January. She is an a1 on the list.

Today they took her off the Respirators at 1pm for the 4th time this time Brilee crashed she is now stable and they have her on life support tomorrow Wednesday 26th I hear they will run test to see if she has suffered Brain Damage, If she did they will remove her the Transplant List…

PLEASE send Brilee get well cards… she will be 8-weeks-old January 29th 2011

St. Louis Children's Hospital

Brilee Marriott Rm 7

One Children's Place St. Louis, MO 63110

I know this will greatly lift my niece Jennifer and her Fiancé Sean spirits up..

Thank you.

Pictures

or

Videos

On December 9^th Brilee had surgery; s/p Norwood reconstruction including an atrial septectomy, division of the patent ductus arteriosus, and placement of a right modified Blalock-Taussig shunt using a 4.0mm Gore-Tex graft.

On January 18^th Brilee was life lifted to Children’s Hospital in St. Louis Missouri

She has passed the entire test to be placed on the Transplant List Monday 23^rd January. She is an a1 on the list.

Today they took her off the Respirators at 1pm for the 4^th time this time Brilee crashed she is now stable and they have her on life support tomorrow Wednesday 26^th I hear they will run test to see if she has suffered Brain Damage, If she did they will remove her the Transplant List…

PLEASE send Brilee get well cards… she will be 8-weeks-old January 29^th 2011